ladymidath

My Father Passed

My Dad had been sick for some time now, his kidneys and other organs had been slowly shutting down due to his age, he was 96. Yesterday he passed away. He was surrounded by family and went very quickly. Please forgive me if I go quiet for a while as I am feeling very sad and alone now that both my parents are gone. Thank you everyone.
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ladymidath

Finally Some Nice Weather

I usually love the rain but this has gotten ridiculous. There was flash flooding everywhere and our underground garages were swimming pools. Finally, it stopped and now we can slowly start to dry out. My heart goes out to those that were flooded out, so many homes destroyed. I know what it's like to be through a flood as it happened to me many years ago and I lost nearly everything. As much as I love the rain, it's nice to see the sun again.
ladymidath

Having A Chilled Birthday

After having such a hectic week, I am glad that Steve and I decided not to go out today, it's raining here and flooding in some parts of NSW. We have decided to celebrate my birthday by staying warm and dry.
ladymidath

Minor Drama

Our Fetch box decided to on the blink today and poor hubby didn't know what hit him, ever since he has had to give up work due to the Cervical Dystonia worsening, he has been watching TV. He had a whole lot of shows taped and ready to watch, then BOOM, the box stopped working. I am on the phone talking to a lovely young man who was helping us reset the box, after forty minutes on the phone (I kid you not,) he decided to send us a new Fetch box. Then after thanking him and hanging up, he calls me back. The problem wasn't the box itself, it was a global DNS glitch that hit everyone. So it turns out, we don't need a new bo, after all, we have it up and running but all the taped shows are gone. After I spent ages setting it all back up again and having to call the service back to get another activation code, Steve went to take a nap muttering about having a headache from all the stress. UGH.

On another happier note. Steve and I finally picked up our rings from the jeweler that we had made. Mine is an eternity ring to celebrate our first year of marriage and our six years together. (Our anniversary was last November.) I wanted a ring with an emerald, ruby, and sapphire and not being able to buy one like that, we had to have it made. Steve bought a beautiful black opal from Lightning Ridge and he had it set into a plain wedding band. The jeweler did an awesome job although he was three weeks overdue in making them, but I would rather he took his time and did a good job rather than rush through it and do a crap job.
We got to see three of our grandkids yesterday as my pregnant daughter was feeling ill and we had to go and pick the kids up from school and preschool. They were all thrilled to see Nanny and Poppy. Steve took Mog shopping and bought her a heap of clothes for the baby, so that was accomplished. I also put money into my middle daughter's bank account so she can buy Easter eggs for her four kids. I wish I was able to see them more often but they live so far away.
so hopefully the rest of the week will not be so eventful.
ladymidath

Not Much Happening

It's been pretty quiet lately because Steve can no longer work we have not been going away that much, that and Covid has pretty much killed our plans to go interstate. We are looking at next year, hopefully, the hellbeast that has been the pandemic may be under control by then.
We are both still volunteering which is great but I worry because Steve gets so tired so quickly these days. His jerking has gotten worse as well so even when he is sitting, he is still moving. Dystonia really sucks. Still, he is very positive and cheerful even though I see him struggling and in pain. He hates not being able to work, but at least he has the volunteering so there's that.
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ladymidath

It's Official

I have now become my husband's carer. Steve has Cervical Dystonia, it's an ugly neurological disease that is similar to Parkinson's. In the last few months, he has gotten a lot worse and is now on a walking stick. He moves so slowly now and is finding doing ordinary tasks really challenging. I have been granted a carer's allowance and payment so I can take care of him full time. We also have the help of an advocate who is helping us navigate through all of this. Steve can no longer work now but he is volunteering with me for a few hours. The good thing about it is that he can sit and rest when he gets tired and the tasks are very easy. The hardest thing about this is that he is not that old, only in his mid-fifties
ladymidath

Quick Update On Stuff

Well now that Steve can no longer work because of his dystonia, knee replacement, and second knee replacement looming, he has taken to volunteering with me at the community social centre where I have been volunteering for a while now. He has taken to it like a duck to water. He greets the clients and manages to help with the equipment. Because Of Covid, we have to deep clean everything and Steve is so good at it. Of course, his dystonia starts to kick in and he has to take a break but the staff are all wonderful. They understand that he is struggling with a horrible neurological disease. I am still trying to get him an NDIS package but with this shitty government, it's so geared against people who a living with serious disabilities. Morrison is talking about an early election and I would love to see his flabby arse booted out of Parliament House but until Murdoch turns up his toes, he will probably get back in. Also, Zuckerberg has made good on his threat and is no longer allowing Facebook to post links to Australian news services. God, this government has no idea of the shitstorm they have created. still, it's amusing to watch everyone melting down about it. What will be interesting is if Google packs up as well, maybe that will shake everyone out of their apathy and take to the streets to get rid of this government once and for all. Sorry, I did not intend for this to become a political rant, but lately, things have taken a turn for the farcical.
ladymidath

Mostly Medical Stuff

Steve and I went to see his pain specialist today and I told her about trying to get him an NDIS package. It funds people who have disabilities and need special treatment, equipment, etc. When Labor (our version of Democrats) were in, they brought in the National Disability Insurance Scheme, then the Liberal Party, (our version of Republicans) took power and turned it into an absolute shit show. People who need it can't get on it or are underfunded. I am still trying to get Steve a package as his Dystonia has worsened so much. We drove to Lightning Ridge to look at black opals and it takes a couple of days to get there as it's in the middle of the desert. Usually, Steve can drive there with no problems, but this time it was so much harder for him. Walking and talking, picking things up is also becoming more challenging for him now. His doctors are great though, they are so supportive and are really helping him so hopefully, we will be able to get funding for treatment and equipment for him.
Lightning Ridge was great. Not many of the opal stores were open as the heat is so bad, people avoid going there until the cooler weather. We picked up a couple of gorgeous opals though. A silver ring with three opals and a black opal that Steve is having set into a wedding ring. So it was a bit of a mixed bag of a week.
ladymidath

A Bit Of Rearranging

Not much happening, we went to visit Dad, and my youngest brought her three kids out to see us so we all went to the beach, we had a lovely day. Steve and I decided to rearrange the furniture in the dining room to make more space. We are so lucky to have an older style unit where we have a laundry and separate dining room plus a big balcony. The unit blocks they are slapping up around here now are tiny and cramped. I am pleased to report I have lost a couple more kilos so the keto diet is still working, yay.
Other than this, not much else is happening, a nice and quiet week.